Wednesday, February 10, 2016

Apparently it is alive and well

I learn a lot from my patients.

Sims AB, Stack BC. An intraoral neurocranial vertical distractor appliance
provides unique treatment for Tourette's syndrome and resolves comorbid
neurobehavioral problems of obsessive compulsive disorder. Med Hypotheses. 2010


Evidence has existed for many years that individuals with Tourette's syndrome (T.S.) have associated neurobehavioral comorbid disorders. Though these disorders are not necessary to give a definitive diagnosis for Tourette's syndrome, many patients present with clinical signs of additional problems. Many believe that Tourette's is a neuropsychiatric disorder with symptoms originating from the brain or basal ganglia. Some of these coexisting conditions include attention deficit hyperactive disorder (ADHD), obsessive compulsive disorder (OCD), depression, sleep disorders, and enuresis. We hypothesize that an intraoral device can be utilized to eliminate these associated comorbid neurobehavioral signs and symptoms. Use of this device, called a neurocranial vertical distractor (NCVD), results in the elimination of unwanted neurobehavioral disorders via normally existing trigeminoreticular fibers and tracts

The easiest way to understand how Sims and Stack explain Tourette Syndrome is to consider the experience of accidentally and unexpectedly hitting a thumb with a hammer, touching a stove, or stumping a toe. Many people will utter a loud “Ouch!” or “Darn” or some other expletive we cannot use on a family oriented website in response to pain.

Suppose the nerve fibers that conduct pain to the brain somehow got crossed with the nerve fibers involved in seeing a woman with large breasts, or being pulled over to the side of the road by a traffic policeman, or seeing a large yellow object. The brain might generate an impulse to say “Piggie! Piggie! Big tits!” or “F—-ing Pig! F—ing Pig!” or “Tweetie Bird! Tweetie Bird!” the same way it generates an impulse to say “S—!” when someone touches a hot stove.
People who have Tourette Syndrome tend to not to have “crossed wires” while they are focusing on difficult or interesting tasks. They often consciously try to suppress inappropriate speech and movements, until they just can’t. Sims and Stack tell us how this can happen.

The nerves leading from the muscles to the brain sometimes amplify pain signals to make sure the brain gets the message. “Fast” pain fibers in a large nerve enter the base of the brain from the face. Nerves that transmit information about temperature enter the brain at the same place, and the outgoing cranial nerves VII, IX, and X leave the brain in this region.

These cranial nerves control the front of the face, the sides of the face, and the lower digestive tract. Sims and Stack believe that if these nerves are compressed together, they may engage in cross talk, similar to a short circuit, transferring nerve impulses from one to another, partially bypassing the higher control centers of the brain. The stronger the nerve impulse, the harder it is for the higher levels of the brain — which are the usual targets of drug treatments — to intervene and stop the tic.
Dr. Sims and Dr. Stack treat Tourette Syndrome by relieving the physical pressure on the nerves entering the base of the brain so there is less cross talk. They have developed a plastic dental appliance they call a neurocranial vertical distractor, which “distracts” the fibers entering the base of the brain from the cross talk of neighboring nerves.

Fitting over the lower teeth, it holds the lower jaw in place so there is less pressure on the base of the brain. Wearing this appliance 24 hours a day reduces symptoms of Tourette disease in adults, as you can see on YouTube. When the proper spacing of the jaws is determined, these dentists report, all tics cease immediately.

Even more promising, however, is the possibility of using this dental appliance in treating younger children who are just beginning to have symptoms of Tourette. The first symptom of Tourette’s usually appears at the age of five, about the same time the skull grows tight over the area where the nerves involved in tics enter and exit the brain. The first tics usually involve the eyes.

Let me go on to say that, similar to the controversy over Brain Balance — a $6,000 program that promises to alleviate tics and other symptoms based on rewiring the brain through diet and specifically targeted exercises — there is a lot to be skeptical about when it comes to Dr. Sims and Dr. Stack.

There’s not enough substantiated evidence that this works!” people say. “So what if some people say it works. These guys could be quacks!”

My response to these doubts is the same I give about Brain Balance, “Western Medical doctors are quick to hand out pills to kids to dull their brains and their tics, and those sometimes don’t work. In fact, no doctor even knows why a kid develops TS, so why is their pill more valid than an alternative treatment?...

So that’s my question to you all: Would you take a chance on something if you weren’t 100 percent sure why it worked but it worked? And it was noninvasive?

My husband wouldn’t. We are night and day on this issue. While I admit I want “a cure” as much for me as my son (who really could care less) it seems nuts to my darling mate. I think often about my experience with my chiropractic kinesiologist: Rex had no idea how Dr. Carroll could place some vials on my kid’s chest and tell me what he was allergic to. But by golly, one traumatic and expensive blood test trip to the doctor confirmed the exact same results.

Search YouTube under "tourette stack".  There are numerous videos available.

1 comment:

  1. My response to the parent who first informed me of this treatment: The neurocranial vertical distractor treatment seems to work in Vienna, Virginia. Funny, after all these years such a remarkably successful treatment is not being used by everyone. Dr. Stack and Dr. Sims wrote a paper on this in 2010, but neither has added anything to the medical literature since that time. This, I suspect is one of many alternative approaches to tic treatment that produce amazing videos and have testimonials galore. If they are, indeed, so good and effective, why is everyone not using them?