Thursday, July 11, 2019

SUDEP?

Disney star Cameron Boyce’s father took to Instagram on Wednesday to share a heartbreaking message alongside what is one of the last photos ever taken of his son.

“My son. Just hours before he was snatched from our lives. I miss him terribly. I hope that no one ever has to feel the agony I’m feeling but no one is immune to tragedy,” the 20-year-old’s father, Victor Boyce, began.

“The outpouring of love and support our family continues to receive is so beautiful and appreciated. Thank you all for helping us through our worst possible situation,” he continued.

Boyce died following a seizure on Saturday. The seizure “was a result of an ongoing medical condition, and that condition was epilepsy,” the actor’s family said in a statement.

"I love you, Victor. I love you, Libby. I love you, Maya. And I will ALWAYS remember your beautiful son, Cam,” one of Boyce’s "Descendants" co-stars, Melanie Paxson, commented on the post.

“Hey Victor, Cameron is our Forever Boy. We will carry his goodness forward with us every day of our lives. Look up, he is there! You are not alone,” wrote producer, director and choreographer Kenny Ortega in response.

“I love you and your whole family so much and forever. There was life before this, and now life after this. My thoughts have not left you and they will stay with you,” shared actress Dove Cameron, another of Boyce’s “Descendants” co-stars. Cameron also posted a six-part black and white video series to Instagram honoring her late friend and co-star.

Other notable people — including former first lady Michelle Obama — also honored the late actor and philanthropist following his death.

https://www.foxnews.com/entertainment/disney-cameron-boyces-father-photo-instagram

The sudden death of Disney Channel star Cameron Boyce has brought to light a rare, yet fatal complication known as Sudden Unexpected Death in Epilepsy (SUDEP). Approximately 1 in 1000 people with epilepsy die a sudden death .

Doctors are not certain why these unexpected deaths occur, but they are most common among people who suffer from tonic-clonic seizures.

"Tonic-clonic seizure is when a person all of a sudden drops to the ground. They become unconscious and their body starts to stiffen and shake in a rhythmic pattern," informational services coordinator at Epilepsy Association of WNY Renay Moran said. "They can lose control of their bladder or bowels. Their respiration slows down and their skin turns slightly blue.

These types of seizures are uncontrolled, can trigger cardiac arrest or even death.

"Unfortunately, a lot of doctors don't tell their patients about SUDEP," Moran said. She believes this is because doctors do not want to give epilepsy patients any added stress.

"What are the chances of getting hit by a car? It's probably the same chances of having someone die of SUDEP," Moran said.

To lessen the risk of dying from SUDEP:

Take your medication on time
Get eight hours of sleep
Go to therapy or seizure management practices to control seizures
Avoid triggers

https://www.wkbw.com/lifestyle/health/what-to-know-about-sudep-the-complication-that-killed-cameron-boyce


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