Andrew McWilliams, Colin Reilly and Isobel Heyman. Non-epileptic seizures in children: views and
approaches at a UK child and adolescent psychiatry conference. Seizure:
European Journal of Epilepsy. In
press. Seizure: European Journal of
Epilepsy, In press.
Abstract
Purpose
To describe clinical experiences of paediatric non-epileptic
seizures (NES) among doctors attending a UK child and adolescent psychiatry
[conference].
Methods
Sixty-six participants completed a semi-structured bespoke
questionnaire.
Results
are reported using descriptive statistics.
Results
Two-thirds of respondents regarded the best name for the
disorder to be “non-epileptic seizures”. Although most doctors saw new cases
each year, two-thirds described their own service as poorly equipped to manage
NES. Anti-epileptic drugs (AEDs) were commonly still being taken by children
without epilepsy 6 months after their diagnosis. Preferred treatment approaches
included supportive case management and cognitive-behavioural therapy. Joint
working with paediatrics and liaison with schools were seen as important.
Conclusion
Despite many clinicians having experience of the disorder,
NES seemed to occupy a neglected status, often falling between paediatrics and
child mental health, with inadequately defined care pathways leading to
sub-optimal treatment. Re-configuration of services to prioritise liaison with
paediatrics and education may support development of effective treatment, thus
maximising health, social and educational opportunities for young people and
their families.
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