A little boy born with no eyes and a gap in his face is
bravely raising awareness of what it's like to live with facial differences.
Christian Buchanan, six, was born with a condition called
Tessier cleft lip and palate - so rare there are only thought to be 60 cases
documented in medical history.
The condition is caused by the facial tissues not joining
properly during a baby's development.
It can leave sufferers with severe facial disfigurement,
unable to eat, speak and see.
Christian's mum, Lacey, from Woodbury, Tennessee, said as a
result of her son's condition he's never been able to see.
"His condition was caused by amniotic banding
syndrome," she said.
"Fibrous bands can form in the womb and if they attach
to the baby they cut off blood flow, so Christian's banding happened to attach
to his face."
When Christian was born, he was unable to eat due to the
large gaps on his face where the cleft palate was and has used a feeding tube
since he was four days old.
Despite learning and speech difficulties, Christian's
condition hasn't stopped him from living a full life.
Lacey explained, “Christian is a very typical six-year-old
little boy. He's learning to read, he likes to wrestle with his little brother
- all the things that any six-year-old would enjoy.
“The biggest way Christian’s condition affects his daily
life is his vision impairment."
“Because he is completely blind, he has to learn to navigate
the world in the dark.
"Our world is made for sighted people and he has to
learn to live in it without the benefit of sight and so we have to do things a
little differently sometimes but its totally doable and he is doing it.”
The six-year-old has so far had seven operations, three to
reconstruct his face and close the gaps that the cleft created.
And mom Lacey said he is set to have more surgery, with the
hope that one day he will be able to speak and eat properly.
While she hoped to bring her son up in a world that
understands different conditions, Lacey said she's been shocked by people's
reactions to Christian.
“I was unaware before Christian was born that there is this
huge social stigma about being different, looking different, and most people
didn’t know how to handle somebody with that type of difference," Lacey
said.
“Just recently we had an issue, we were in a store and
Christian was playing with a little toy in the shelf and a lady walked by and
said, ‘eww'."
Lacey said Christian has heard people making comments,
hearing kids say things like "why does he look like that?" and
"what's wrong with his eyes?".
She said she always answers back in a very positive, upbeat
tone, telling people it's just how he was born.
When kids ask why he has red eyes, Lacey tells them,
"That's just how he was made, he has got red eyes, you know, it's
cool."
And she said her son has learned to tell people "that's
just how God made me."
"He would say, 'that's how I was born and I was born
awesome'," Lacey said.
As well as being a keen violinist, Christian is currently
working towards an orange belt in karate.
Lacey said, “I would definitely describe Christian as
independent.
"I remember a few years ago he started saying, ‘I want
to do it all by myself mummy'.
“He’s curious and he wants to explore the world and he’s not
afraid to do it.”
Despite how brave her son is and how far he has come, Lacey
said she can't help but worry about his future.
That's why she's determined to raise awareness of
disabilities, to help make the world a better place for her son, and many
others like him.
She added, "I want to share my family’s story to raise
awareness for disabilities in general and specifically facial differences.
“I want to do away with those preconceived notions that
people have about what it means to have a disability, what it means to have a
facial difference.
"And I hope that I’m fostering an atmosphere of
acceptance and understanding and respect for differences so that the world will
just be a better place for Christian one day.”
http://www.foxnews.com/health/2018/03/09/was-born-awesome-6-year-old-born-with-no-eyes-is-raising-awareness-about-being-different.html
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