Dylan Finglas is a happy, beautiful little 3 year old boy. Today Dylan smiles, laughs, enjoys playing, interacts, he can feed himself and he is not in any pain nor does he receive any medication. He is beginning to show minor signs of the condition. Without something to stop this devastating illness, most children don’t get to see their 10th birthday. Rapidly in the next few years he will develop breathing difficulties, he will lose his sight, his hearing, the ability to walk, to swallow and his organ functions will deteriorate and eventually fail. Children with MSD would be expected to have severe brain damage by the age of five or six. This tragic outcome is inevitable. It is a 100% certainty unless the treatment is developed for humans. Currently there is no ready cure, nor is there any treatment to slow the condition. It’s any parent’s worst nightmare to have to watch their innocent child’s health and wellbeing deteriorate.
Gene therapy at The Telethon Institute of Genetics & Medicine in Italy has successfully stopped MSD in lab tests. Unfortunately the positive research results have stopped there. Funding is critical and urgently needed to push clinical advancements to human stages as soon as possible. Every donation counts in our goal to save Dylan and all children with MSD throughout the world. Time is of the essence in order to treat these children before significant symptoms of the condition progress. Months, weeks, and days matter… Your help spreading the word and donating will help ensure the cure is produced for all affected patients. Please give these children a chance at life.